Annnnnd … we’re back, baby!
We’re on a new channel. A comedy central, if you will.
Okay, too much Futurama.
But I need to get back into blogging, keeping track of this and me and pain and life and research.
New things – Kelly Young is paying attention to the idea of RA, as always, but also to the more accurate naming of it – a “Rheumatoid Autoimmune Disease” here which is awesome.
But us #dxpsa folks are still kinda left out there. Not picking on her, of course, we need to find the time and energy to organize. And what to call it? When I do my “elevator pitch” about what the hell is wrong with me, the arthritis-like symtoms are the most … what’s the word … relatable.
Which sucks since it’s wrong. The exhaustion is often more prominent, or the muscle pain. Right now my fingers are swollen and tingly, and my feet and ankles hurt from some MILD gardening I did today.
And, unlike MOST of the Psoriatic Arthritis patients I know, I don’t even PRESENT with Psoriasis. WTF, man? I have one little patch on my arm, and one on my ass that come and go. I have some kind of bizzaro crap going on under my hair I can’t even begin to describe, but two dermatologists have INSISTED has nothing to do with psoriasis.
If anyone comes up with another name for Psoriatic Arthritis, let me know. Inflam Oh’Damn isn’t taken …