Hurty Gertie

1. Ask about screwed up shots
2. Note that I’m on a reduced allergy dose because of themassive psychotic dreams
3. Note that I’m off the antidepressant that reduced the massive psychotic dreams
4. Note that I’m on a reduced Allegra dose because of the massive muscle cramps
5. Note that I’m off the antidepressant that reduced the massive muscle cramps
6. Note that I’m on a reduced Allegra dose because of the massive crazy ass mood swings
7. Note that I’m off the antidepressant that for a while reduced the massive crazy ass mood swings
8. Tell her I injured my foot so I’ve sat on my ass for most of a month
9. Note that yes there is a ten pound gain but I’ve started working out every morning

I think that about covers it.

Based on how my joints feel I think I need to spend some money on decent supportive shoes. If I can’t find any without laces (damn psoriatic arthritis), then I may have to buy some ugly support shoes. So much for breaking free of corrective footwear*.

We’re on a new channel. A comedy central, if you will.

Okay, too much Futurama.

But I need to get back into blogging, keeping track of this and me and pain and life and research.

New things – Kelly Young is paying attention to the idea of RA, as always, but also to the more accurate naming of it – a “Rheumatoid Autoimmune Disease” here which is awesome.

But us #dxpsa folks are still kinda left out there. Not picking on her, of course, we need to find the time and energy to organize. And what to call it? When I do my “elevator pitch” about what the hell is wrong with me, the arthritis-like symtoms are the most … what’s the word … relatable.

Which sucks since it’s wrong. The exhaustion is often more prominent, or the muscle pain. Right now my fingers are swollen and tingly, and my feet and ankles hurt from some MILD gardening I did today.

And, unlike MOST of the Psoriatic Arthritis patients I know, I don’t even PRESENT with Psoriasis. WTF, man? I have one little patch on my arm, and one on my ass that come and go. I have some kind of bizzaro crap going on under my hair I can’t even begin to describe, but two dermatologists have INSISTED has nothing to do with psoriasis.

If anyone comes up with another name for Psoriatic Arthritis, let me know. Inflam Oh’Damn isn’t taken …

http://en.wikipedia.org/wiki/Psoriatic_arthritis

it is possible to mess up those plungy shot things. WTF. I got it in but pulled up a little too soon and a bit dribbled out and down my leg.

Now the foot itching has begun – damned if you do, damned if you don’t. AUGH. I need a drink.

Or maybe my smartphone is smarter than I.

I’ve been messing with my meds, some intentionally, some not. I’m getting on to the end of my “month” which I define as the last sunday every month. Which is probably stupid but whatever. My smartphone wants me to go on calendar days. How dumb is that?

I’m “due” for my shot Sunday night, but why? I hurt now. I’m tired now. Maybe I should do it Friday night, and do Friday nights from now on. Then at least I can enjoy my weekends instead of grinding through them before I stick myself and go to bed.

PS, yes, pharmacy, I’m ignoring you. I can’t find my co-pay paperwork and I’m not going to talk to you until I do.

I’ve thought of the thing to say that is least likely to get me punched to folks hopping out of their placarded vehicles and sprinting over to the latte shop.

“Wow. Isn’t is wonderful having a pain-free day? Good for you!”

Not dead yet, just a bit whelmed.

I wonder if it was a bite. Probably was.

Leg flared up and hurt unlike the other time I had an infection – maybe I do have psoriasis, you dumbass. The raised redness, the dry flakiness of the skin … yeah. Which went away after rest and stuff.

I finally got around to trying that medicated shampoo from the dermatologist who said I don’t have psoriasis. But I googled it first. It’s a psoriasis med!

PSORIASIS. DO I HAVE IT, MOTHERF***ER?

Need another opinion …

Another one in 200 – and she’s started updating again!!!!

http://understanding-psa.blogspot.com/

And my shiny new full time desk-flying job and gold-plated health insurance … maybe I won’t spend 7.5% of my pre-tax income on meds and bills this year … woohooo!

I honestly dont get WTF is wrong with me. 

Yes, it’s hot. Yes, pollen count is INSANE. Yes, I’m stressed (more about that when I can). 

WTF is with my knees? Elbows? Everything – except my scalp. Everything hurts though I’m not that swollen. Ice and Aleve barely touch it. I’m ditching a family vacation this weekend that involves heat and walking about in it. 

At first I feared I was flaring up again, but when I reread my pieces of flare entries, it didn’t match up, symptom wise. (I am so glad I wrote it all down!!)

But I rested my ass off anyway. I just keep getting worse and worse and I’m baffled. I’m finally doing everything right! And yet …

No wonder I’m all swelly and achy (I HATE THE SWELLING). I missed my shot – two shots in a row that I did at a month apart instead of three weeks apart. Well, I have a checkup soon. Will talk about it then.

Just tired and swelly lately. Spring is quickly turning into Summer weather here. Trying to up what I can do while taking it easy enough. Have a plan for working out this summer in the morning before work – must see if I can get the rest of the family more autonomous in the morning so I can do so ….

Took my shot and bananas did it hurt. I hope it helps for how much it hurts. I’m so glad it’s a pretty Gertie-Proof auto shoot plungy thing. I don’t think I could give myself a real shot.

Then again, I didn’t think I could do this, either. And so far … well … I’m still blogging and trucking along with doing my job as a patient. A lousy job sometimes, but keeping on keeping on.